Although it's obviously true that most people wouldn't want to contract any kind of disease, those who end up with a particularly rare ailment are in an even more unfortunate situation.
Because while there are common and well-understood diseases with fearsome effects, we can often find there's at least an encouraging outlook on treating it because doctors aiming to do so have a wealth of research and historical options at their disposal.
But not only does that research shrink and those options become more experimental when a disease is rare, but it's also possible to have a condition that's so uncommon that doctors are split on whether it even exists.
Those factors are making the jarring situation that one Australian woman found herself in even more complicated and frustrating.