A serious, chronic illness is hard enough to deal with when it rears it head by adulthood, so it's difficult to even imagine how it must feel for a child.
And yet, these conditions don't discriminate, so anybody could potentially have to live with them. So the best we can do when something like this happens is to try and make that child feel as comfortable as possible.
That's why one Scottish woman is doing her part to give kids in these special situations at least some sense of normalcy.