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There Was Little Support For People With The Same Rare Disease So She Stepped Up
Pulmonary hypertension is a rare life-threatening blood vessel disorder.
It affects the lungs and heart and causes pressure in the pulmonary artery that goes from the heart to lungs to rise above levels that are normal.
The pressure can cause the right side of the heart to enlarge and cause right-sided heart failure.
On Christmas Eve, Serena had a right heart catheter put in.
She was having severe right-sided heart failure and put on supplementary oxygen. At the age of 25, she was given 5 to 10 years to live.
Symptoms of PH include passing out, chest pain, high heart rate, unusual shortness of breath, a swelling belly and/or ankles, fatigue, and blueish lips and/or fingers.
It can be caused from other diseases like autoimmune diseases but in some cases it develops on its own accord.
So when Serena’s life was just starting to take off, she was given news that changed that...but only if she let it.
She found there wasn’t really a safe place for people living with PH. Even though she knew how serious the disease is, she needed to find hope. Instead she kept finding the same sad news that her doctors had told her.
Then she finally landed in an online support group where she could talk to others living their lives despite the disease. She didn’t understand why this information wasn’t more available, so she took things into her own hands and created The PHight or Flight Project.